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-Valley Fever Survivor
#1 Valley Fever Patient Advocacy Organization
Sounding the Alarm on the Valley Fever Epidemic Since 2002
The Worldwide Hub of the Valley Fever Community
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Valley Fever Survivor provides a great deal of important information about coccidioidomycosis and the devastation it has caused in Arizona, California, the Desert Southwest, and all around the world. Please click the items in this section to learn more! Visit our home page http://www.valleyfeversurvivor.com to read updates at the front page and view our introductory video
Founder's Story
Maps and History
Valley Fever Survivor's Action Letters
Links to other sites with useful coccidioidomycosis information and how to contribute to research
Valley Fever Survivor's online videos in their YouTube channel
Valley Fever Symptoms
Frequently Asked Questions about Valley Fever
Valley Fever Facts and Commentary
Misconceptions, myths, and the truth about Valley Fever
Dawn to dusk weather conditions to show the risk of Valley Fever
Books about Valley Fever by Golden Phoenix Books






Video Review:
"This video is wonderful. I wish the entire Country could view it because it is important for the citizens to know about this vile fungus that invades your body simply because you breathe. The video shows the importance of owning this book so you can learn what Valley Fever is, how to deal with it, how your family can deal with it, and finally, that you are not alone. This book helped me gain a positive attitude in dealing with my illness, and there are still days when I pick it up to check on certain things. The video and the book could literally help thousands of people deal with Valley Fever. I will forever be indebted to Sharon Filip & David Filip for working so hard to help those infected with this BioHazard. They certainly helped me."
Honey De Serre, AZ

Valley Fever Epidemic The Official Valley Fever Survivor Medical Glossary The Smart Patient's Handbook
See more videos below.

"This book [Valley Fever Epidemic] is like the Bible for Valley Fever. I have struggled with Valley Fever for 2 years, and the time and effort that was put into this book has been invaluable. If I ever wanted a question asked about treatments, new drugs, or medical jargon it was all in the book and explained so that you can understand. If you have VF or know someone that does or even if you live in one of the endemic areas you should own this book it could save your life."
Kenny Manzer, CA

If you breathe, you can get Valley Fever!

Valley Fever Epidemic is the first and only comprehensive, complete, and up-to-date book written for the lay person on the subject of coccidioidomycosis, commonly known as Valley Fever.  It features detailed in-depth information on the disease's symptoms, diagnosis, testing, risk factors, drugs and treatment, and more.
Read editorial reviews here

Our books are available at GoldenPhoenixBooks.com, Amazon.com, BarnesAndNoble.com, and can be ordered at brick-and-mortar retailers as well. Valley Fever Epidemic can be purchased at all the sites above as well as www.ValleyFeverEpidemic.com. E-Books are also available.

We are an all-volunteer organization. Through your purchase of our goods at the VFS store or our books it will help us to reach our ultimate goal which is to bring attention to the disease and funding to the research for a vaccine and a cure. Nothing is more important than your health and the health of a loved one or pet.






 
The VFS Educational Film series continues!

Click on each thumbnail picture above to see the whole video.  Or check out the videos of the Valley Fever Survivor Educational Film Series in the playlist at our You Tube channel: http://www.youtube.com/valleyfeversurvivor

This is only the beginning so stay tuned!

New Page for Food, Supplements, and Appliances

When people want to improve their overall health we have been pointing to health and nutrition research for years. Now the same products we discuss and use are available all on one page. Any purchase from that page will also help VFS in our advocacy efforts. Click here to see more. Wishing everyone the best of health!

New Valley Fever Voices Video Series

Valley Fever Voices is our video series for survivors and family members to share their stories of struggles, losses, and triumphs when dealing with this disease. The long-form interview format allows them to provide a more complete picture of what they experienced. If you or a family member has Valley Fever, it is important to know what others have been through.

Latest video: Gina Potter had a severe case of meningitis from Valley Fever. The severity of this was compounded by delays in diagnosis and medical understanding of her case. It was also complicated with hydrocephalus, a dangerous pressure on her brain due to an increase in fluid within her skull. She explains the course of her recovery, involving a variety of treatments, the use of the Ommaya Reservoir to put antifungal medication directly into her cerebrospinal fluid, and the necessity of a positive attitude.

Sharon Rose Hatt Garrett had not only experienced problems from Valley Fever, but also from various doctors and medical professionals whose attitudes and inadequacies compounded the problems of proper care. Even worse, her own family did not understand how severe Valley Fever could be, and she shares some of the strains and changes in the family dynamic that can occur from Valley Fever.

It is fitting that Jerry Galang was our first interview in the Valley Fever Voices series since he was also the first person to sign in with a questionnaire at Valley Fever Survivor in 2002.

We met and worked with Kathy Terrell near the time valleyfeversurvivor.com began while her brother Max Blalock was sick with Valley Fever. We were honored she stayed with us to help others even for years after Max passed away from Valley Fever in 2003.

In the second video in the Valley Fever Voices series, Kathy Terrell shares some of what she wrote about Max's complicated tale of Valley Fever, including the problems caused by the disease and problems caused by unhelpful medical practitioners. She also shares information about Max himself to honor his life, and included pictures to show him as he lived.


New Video on VF in Washington State

David Filip had the opportunity to interview Dr. Tom Chiller, MD, MPHTM, Deputy Chief of the Centers for Disease Control's Mycotic Diseases Branch. Dr. Chiller has a major role on the investigation in Washington State.

The discussion was fascinating and included some answers that have not appeared in print so far. The interview will bring you up to date on all the information known about findings of VF in Washington State.


2014 VALLEY FEVER SURVIVOR TELECONFERENCE

If you have not yet signed up for this Q & A session on June 21st at 11AM Pacific Time, please do so as soon as possible. You can pre-register to be a part of the teleconference by providing us with your name and the telephone number you will use to call in by emailing it to voiceforaction@valleyfeversurvivor.com. If you have a specific question in mind ahead of time, please send the question by email as well. When your spot is reserved you will receive the call-in number for this teleconference. Edit: Thank you everyone for coming!

Valley Fever Survivor Radio Interview with Todd Snowden from DxNA about the new Valley Fever Test

Todd Snowden, Director of Business Development at DxNA talks with Dave about the upcoming new Valley Fever DNA-based test, how it will be used in patients, and the benefits of a test that provides results in 60 minutes and lives by the slogan "Anywhere, Anytime, by Anybody." Click here to listen to the interview. This interview also discusses the crowdfunding campaign for this project at https://www.indiegogo.com/projects/valley-fever-diagnostic-test

New endemic areas?

It is very common for people with a travel history to endemic areas to have their Valley Fever cases diagnosed elsewhere. However, soil testing has now found the fungus in Washington State east of the Cascades. Initial consideration of the possibilities behind this discovery are noted in this link. Valley Fever Survivor will keep you updated as new developments arise.

David Filip's Speech at UC Merced
Public and Medical Misinformation on Valley Fever
Wednesday, April 23

Download the PowerPoint slides for Dave's UC Merced presentation here

As a part of UC Merced's Health Sciences Research Institute lecture series on Valley Fever, Valleyfeversurvivor.com co-founder and Valley Fever Epidemic author David Filip will offer a teleconferenced presentation on the darker side of Valley Fever education - the misinformation that can result when well-meaning educators and doctors have used outdated or misleading sources in statements to the public and patients.

Studying common misconceptions can help health professionals avoid these mistakes and lead to a better understanding of the facts. This presentation will uncover a side to the Valley Fever problem that many professionals intimately familiar with the topic have never seen before.

Since David could not attend in person at the university, this speech will be presented by teleconferencing on

Wednesday, April 23
1:00pm
UC Merced, Social Sciences and Management Building, Room 366


For more information about the Valley Fever series at UC Merced, and the schedule for David Filip's speech and other upcoming UC Merced Valley Fever presentations, click here.

Additional details will be added when information on streaming and archived recordings are available. We hope many of you can attend.


Viewfinder PBS Documentary
Deadly Dust: Valley Fever in the West
March 26th at 7pm on KVIE

The PBS KVIE documentary series Viewfinder's upcoming episode Deadly Dust: Valley Fever in the West had assistance from Valley Fever Survivor. In addition to providing background information and an interview with Sharon Filip and David Filip, we connected producer Jason Shoultz with five members of our "Valley Fever family" who were interviewed and will appear in the documentary. The interview with David Filip and Sharon Filip was added as a web extra for the documentary along with extended interviews.

This is the official page for "Deadly Dust: Valley Fever in the West." This documentary is available for viewing at the above KVIE web site as well.


News and Views from Vaccine Project Chairman Mike Cooper on VFS Radio

Valley Fever Americas Foundation Chairman Mike Cooper shares his perspective on many important topics. How the Vaccine Project has grown and changed? What are the current funding concerns for the vaccine? How does he view the overall problem of Valley Fever publicity? What will happen with the new congressional Valley Fever task force?

These questions and more will be answered from the unique perspective that Mr. Cooper brings from decades of volunteering for the Valley Fever cause.

Hear it all at http://www.blogtalkradio.com/valleyfeversurvivor/2013/08/07/news-and-views-from-vaccine-project-chairman-mike-cooper-1.


August 10, 2013
Walk for the Valley Fever Vaccine Project

The Valley Fever Americas Foundation is holding The People And Pets' Walk for Valley Fever to fund the vaccine project at Pioneer Village in Bakersfield, CA. The walk will be followed by a raffle, closing remarks, and a celebration in memory of Valley Fever pioneer Dr. Hans Einstein. It all starts on the morning of August 10, 2013 with registration 7 AM and the walk at 8, but you can pre-register and get more information at the event's official site:

http://valleyfever.com/walk2013/


Valley Fever Survivor on Blog Talk Radio with Vaccine Researcher Dr. Garry Cole

In this episode Dave will interview leading Valley Fever Vaccine Researcher Dr. Garry Cole from the University of Texas at San Antonio. The show will include a discussion of vaccine work, publicity, and even what the Coccidioides spores actually eat. Hear it all at http://www.blogtalkradio.com/valleyfeversurvivor/2013/07/15/interview-with-valley-fever-vaccine-researcher-dr-garry-cole.

VFS and the BBC

Sharon Filip and David Filip were interviewed by and assisted Tom Geoghegan for his BBC report on Valley Fever.

New VFS Video about
Valley Fever in California's Prisons

Why is there such sudden interest in the health of California's prisoners? The epidemic of Valley Fever inside and outside of prison has been going on for years, especially in Avenal and Pleasant Valley. How bad is it? Are there racial factors behind California's controversial decision to relocate prisoners? What might have motivated bureaucrats to suddenly notice the suffering Valley Fever has been causing for prisoners? And is there any action being taken to protect those outside the prison? This video seeks to answer these questions.


Valley Fever Survivor on Voice of America

Sharon and Dave from Valley Fever Survivor were interviewed by Voice of America's Mike O'Sullivan for a report on Valley Fever. You can read the text and watch the accompanying video at the link below:

http://www.voanews.com/content/valley-fever-raises-concerns-in-california-arizona/1664959.html


New Video from the VFS Educational Film Series
Beyond the CDC's Valley Fever Report

The Centers for Disease Control (CDC) released an April 2013 report about the Valley Fever epidemic from a review of cases from 1998-2011. How complete was it? What else should they have noticed? When Valley Fever Survivor fills in the blanks, you may find the CDC's silence shocking on quite a few points.


New Air and Soil Testing for Valley Fever
Hear about it on Valley Fever Survivor Radio

Part 1 of the Q&A with Dr. Tabor at Valley Fever Survivor Radio
Part 2 concludes the Valley Fever Survivor Radio interview at this link.

The University of Arizona College of Public Health's Dr. Joe Tabor is our guest on Valley Fever Survivor Radio to discuss his recent project to detect Valley Fever's spores in the air and soil far more cheaply than ever before.

"Because the potentially fatal valley fever fungi are so difficult to isolate from the soil and air I am developing an improved and less expensive petri dish method that does not use laboratory animals. Your tax deductible donations will allow me to validate my method in North, Central, and South America. Funding that exceed the minimum Goal will also be used to collect ecological and exposure data. I offer you the opportunity to observe aspects of this research in person or by video."

You can learn more about the project and donate to its funding here: http://www.rockethub.com/projects/18785-valley-fever-fungus-detection-from-soil-and-air

A video of the interview will also be released, but for now you can hear Part 1 of the Q&A with Dr. Tabor at Valley Fever Survivor Radio and Part 2 has more information about pets, cost effectiveness, and the views of those outside endemic areas.


Valley Fever Survivor Teleconference
Saturday, January 19, 2013
2PM Pacific, 4PM Central, and 5PM Eastern Time.

This FREE teleconference is open to anyone interested in learning about Valley Fever and how to become your own best advocate. Tell everyone you know about it. All that is required is an email to voiceforaction@valleyfeversurvivor.com with your name, phone number to be used for the call-in and email to contact you with the proper phone and code to join the teleconference. Your reservation is required for attendance.

There will be a FREE SPECIAL PROMOTION for those who attend if interested. We hope you can get friends, family, neighbors and co-workers to listen in and learn.

Did you hear about the new fungal disease found in Arizona? At the Teleconference we will tell you what it is called, how it affects the body and whether you may have it and not know it. This could coexist with your Valley Fever and may be the cause of some of your health problems. Everyone needs this information.

Also, Valley Fever has been found to occur outside of the known endemic areas. Want to guess which state it is now in? Stay tuned and you will find out at the Teleconference.

We look forward to speaking with many of you there! Don't forget to make your reservation. You won't want to miss this Teleconference!

We look forward to speaking with many of you there! Don't forget to make your reservation.


Sharon's Desk Update

The NEW Sharon's Desk audio series has begun. This will be the first of many to come.


Valley Fever Survivor is now on Blog Talk Radio

Listen to the replay of our 1st live broadcast with special guest Lance Dreher from the Sunday, October 7, 2012 show.

See the replay at http://www.blogtalkradio.com/valleyfeversurvivor and learn more about Lance Dreher at http://www.thedietcoach.net


Valley Fever Survivor's Simple Guide to Sprouting

Considering the toxicity of the drugs and the way they make people feel, those with valley fever are looking for ways to improve their health by other means. In many cases, for people with Valley Fever or anyone who just wants to eat healthier and feel more alive, sprouting can be a big step to better health. Check out this informative sprouting video below or on YouTube



VALLEY FEVER SURVIVOR TELECONFERENCE
August 26, 2012



Please enjoy the recording of the VFS Teleconference that was held on August 26, 2012.  The replay recording can be heard here and on YouTube (shown above). Below is some information about the teleconference.

-Current statistics to show what is specifically happening in the ongoing epidemic.

-Information about the successful August 22nd settlement of a Valley Fever lawsuit against the Federal Government.

-How to eat for Valley Fever. We will break it down into four categories of dietary strategies:
--Early Valley Fever
--Dormant Valley Fever
--Valley Fever when it presents chronic issues
--The long term lifetime eating strategies for Valley Fever
--and more info you never heard before

At the end of the conference there was an hour-long question and answer session with Sharon and Dave.


In Memory of Dr. Hans Einstein

VFS has always loved and admired Dr. Hans Einstein.

We must very sadly report that Dr. Einstein, Valley Fever treatment pioneer and friend to everyone who was involved in research and writing about VF, died Saturday, August 11th. This was the same day people walked in support of the Valley Fever cause and his ideals in his home city of Bakersfield, CA. Our deepest sympathy go out to his daughter Jessica and all other friends and family.

The entire Valley Fever community mourns his loss as he was the most knowledgeable, caring and empathetic doctor in the field of Valley Fever. The world now loses one of the greatest of all time. The entire Valley Fever Survivor community mourns his loss.

I am sure he has a special place in heaven for all he has done for humanity. God bless you Dr. Einstein.


David and Sharon on "Fitness Talk"

David and Sharon were guests on the radio show "Fitness Talk with Lance Dreher." The show aired on Phoenix Arizona's KFYI 550am radio at 5:00pm on Saturday, May 26th. A survivor of disseminated Valley Fever himself, Dr. Dreher dedicated the hour to a discussion of Valley Fever.

An archive of the show can be heard at http://lancedreher.com/ for listening online and below.



2011 in Review:
The Ongoing Valley Fever Epidemic in Arizona

2011's provisional Valley Fever caseload totals are in for Arizona.  As with most years' totals, Arizona set another record-breaking year of sickness and infection with the Desert Southwest's local secret. Compared to 2010's total Valley Fever case reporting (11,895), a record year at that time, 2011 had 16,438, a 38% increase in case reporting. Considering the major storm activity and lack of warnings, this should not be a complete surprise.

Although the monthly caseload did not account for them, there were an additional 126 cases reported to the ADHS office of Infectious Disease Services' provisional data for Valley Fever, bringing the total caseload for 2011 to 16,438.

But these are reported cases, not the estimated total number of infections. Using the CDC model, the estimated monthly average came to 68,500 infections each month, 2200 infections each day, and another record-breaking annual total: 821,900 estimated infections in Arizona for the year.  See the chart below for more detailed monthly data.

Arizona's Daily and Monthly 2011 VF Caseloads
Month Cases/Day*   Est/Day** Cases/Month Est/Month**
J 48
2400
1478 73,900
F 44
2200
1243 62,150
M 45
2250
1408 70,400
A 45
2250
1347 67,350
M 44
2200
1365 68,250
J 46
2300
1393 69,650
J 45
2250
1380 69,000
A 50
2500
1542 77,100
S 38
1900
1141 57,050
O 39
1920
1216 60,800
N 46
2300
1365 68,250
D 46
2300
1434 71,700

Sixteen additional states also reported cases of Valley Fever.  Eleven of these were outside the endemic zones, indicating travelers who came into the endemic zones to be infected there.  Since most states do not require Valley Fever reporting, the fact that these voluntarily reported their cases indicate a significant spread of this disease beyond the Southwest.

Please Note: We are not ignoring the epidemic of Valley Fever in California, but 2011's reporting was so inadequate that it cannot possibly provide information on the true toll of this disease on the populace.

*Average cases per day based on the monthly cases reported in Arizona's Final Year Data for 2011.
**"Est. VF Infections" refers to the CDC model that estimates all Valley Fever infections in the reporting area based on the number of cases diagnosed there. This estimate includes people whose cases were diagnosed and reported as well as the vast majority who are either undiagnosed, misdiagnosed with another disease, or currently asymptomatic. "Est/Day" and "Est/Month" apply this model as daily and monthly estimates, respectively.

Arizona's 2010 Valley Fever Epidemic

2010 was the worst year ever for Valley Fever in Arizona. The consequences of being infected with this "local secret" agent of bioterrorism has forced hundreds of thousands of new people to contract this incurable, debilitating and deadly disease. Arizona, where 65% of all cases are contracted, had 11,895 infections reported. Using the CDC model that regards recorded cases a approximately 2% of total infections, it is estimated that 600,000 Valley Fever infections occurred just in Arizona alone for 2010.

Arizona's Daily and Monthly 2010 VF Caseloads
Month Cases/Day*   Est/Day** Cases/Month Est/Month**
J 30 1500 928 46,400
F 29 1450 821 41,050
M 29 1450 909 45,450
A 23 1150 679 33,950
M 27 1350 830 41,500
J 30 1500 907 45,350
J 29 1450 871 43,550
A 32 1600 979 48,950
S 30 1500 913 45,650
O 37 1850 1153 57,650
N 45 2250 1351 67,550
D 50 2500 1554 77,700

A breakdown of infection rates for the top two major counties in Arizona follows. They are Maricopa County (the Phoenix area) and Pima County (the Tucson area).

Maricopa 2010 VF Cases Reported Est. VF infections**
Full year 9,466 473,300
Average per month    789   39,450
Average per week    182     9,100
Average per day     26     1,300

Pima 2010 VF Cases Reported Est. VF Infections**
Full year 1,433 71,650
Average per month    119   5,950
Average per week      28   1,400
Average per day        4      200

*
Average cases per day based on the monthly cases reported in Arizona's Final Year Data for 2010.
**"Est. VF Infections" refers to the CDC model that estimates all Valley Fever infections in the reporting area based on the number of cases diagnosed there. This estimate includes people whose cases were diagnosed and reported as well as the vast majority who are either undiagnosed, misdiagnosed with another disease, or currently asymptomatic. "Est/Day" and "Est/Month" apply this model as daily and monthly estimates, respectively.

Just this one state, Arizona, nearly equaled last year's total national infections. If there had been nationwide tracking for 2010 (see "Important Progress" below), the national reporting would undoubtedly have added many more cases. However, when adding in what little reporting there was to California and other areas, it is a fact that 2010's reported infections still represent the worst year ever in the Valley Fever epidemic.

WARNING:
There are some web sites apparently using Valley Fever Survivor's name but soliciting money or suggesting that you help them for various causes. If the sites are not linked from the http://www.valleyfeversurvivor.com web site, they are NOT FROM US.  They are violating the law by misusing our registered trademark and misrepresenting themselves as our organization.

Important Progress!

Early in 2010 we reported on the problem that the Council of State and Territorial Epidemiologists (CSTE) ceased its reporting of Valley Fever to the Centers for Disease Control (CDC).  This caused the major problem that coccidioidomycosis was no longer a nationally notifiable disease, with all the loss of publicity and mindshare in the public health community such a demotion would bring – even after 2009 was the worst national Valley Fever epidemic in history by an increase of 60% over 2008.

Fortunately, at the CSTE annual conference things were finally set straight and Valley Fever was once again a nationally notifiable disease in 2011.

The Ongoing Epidemic

Just like 2008 and so many years before it, 2009 was the worst year ever in the history of the Valley Fever epidemic.  Arizona had a 60% increase in reported cases over 2008.  There were over 10,279 reported VF cases to the Arizona Department of Health Services for 2009.  Using the CDC model for calculation of overall infections based on reported infections, there were over 513,000 people infected with Valley Fever in the state of Arizona in 2009.  For the nation it was over 600,000 cases in 2009.

Although a bureaucratic decision eliminated national reporting of Valley Fever for 2010, Arizona alone reported 11,895 infections in that year. Although national reporting had typically been poor, the estimate model for overall infections in Arizona nearly matches 2009's previous national total of 600,000 people estimated to have been infected. When accouting for testing gathered from other states, 2010 was the worst year on record for Valley Fever.
Our Mission Statement

Valley Fever Survivor was created to educate people everywhere about the potentially debilitating consequences of a Valley Fever (coccidioidomycosis) infection. Founded by the authors of Valley Fever Epidemic, the only informational Valley Fever book designed for general audiences, our web site and advocacy uses up-to-date medical research to improve awareness of this disease. For all those who have died or suffered the horrors of Valley Fever, we have become a voice for action so that others will not have to suffer the same fate.

We are working for political action and also to help raise funds for research. Research projects are in the works and hopefully they will succeed so there will be a vaccine and cure for Valley Fever.

As a visitor to Arizona in 2001 I knew nothing about the possibilities of contracting the state's secret "local disease." A week after I returned home I became ill and it was only a matter of time before I heard the words “Valley Fever.” I had a titer of 1:64 and the illness almost took my life. I hope you will read my Valley Fever story.

Our goal is to end this disease’s obscurity. If people think Valley Fever is nothing to be worried about or have never heard of it, they are not likely to do anything to protect themselves.

Please fill out the questionnaire and appropriate surveys, and write to tell us your story. We feel for all the animals suffering as well as the people. Valley Fever’s toll on the canine population has become an epidemic. The 1980 estimate of ten million human infections (from Dr. Stevens' textbook Coccidioidomycosis) shows this disease has already been an epidemic in humans for decades. Stories about cocci infections in yourself or your family members, or even your dog, cat, horse, etc. are welcomed in the comments section of the questionnaire or the animal survey.

We would like to include different cases of Valley Fever in our upcoming books. If you would like to be considered for inclusion please participate with our web site's questionnaires, surveys, polls, and message boards. You can also email us at voiceforaction@valleyfeversurvivor.com.  Also email us if you are interested in having yourself or a pet included in our upcoming Valley Fever videos.

Thank you,

Sharon Filip
Founder of valleyfeversurvivor.com

 
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