This page shows how you can make a difference now and also includes some of the letters Valley Fever Survivor has sent to politicians and organizations. Everyone with Valley Fever, our friends and our families are at our strongest when we all work together. One united voice for action can make a huge difference. Take action now! The most important things you can do to help Valley Fever Survivors everywhere are as follows:
A sampling of the letters we have sent follows. After the links to our own letters, there is more information about what you should include in your letters.
Our August 2006 petition drive to support federal Valley Fever vaccine funding had 1633 petitioners from 23 states. We sent it with a cover letter to show the importance of fighting coccidioidomycosis and a letter from the citizens of Arizona sent to us by signatories.
Valley Fever Survivor® sent letters to the Department of Homeland Security and to the Department of Health and Human Services on July 30, 2004. These letters clearly show the urgency of action against Valley Fever.
Through our work on behalf of Michael Chechak, we have proven that a difference can be made simply by becoming a voice for action. We hope you will join us. We must speak as one voice to promote awareness of this disease and to help those who are affected by it. Please click on the links below to examine several of the letters we have already sent and read on to see how you can help.
The letter to the Department of Veterans Affairs was sent to help T/Sgt Michael Chechak receive full disability payments for contracting Valley Fever while serving in Arizona. It was also to help warn the American military about this disease, although history shows that American military institutions have known far more about this disease for decades than virtually anyone else. Michael Chechak and his wife Louise had tried unsuccessfully for years to have the full disability claim recognized. By providing them with the pertinent information we had researched, they were finally successful in achieving the full disability payments Mike was rightfully due. Because of Mike's case, there is also a new disability classification in the Armed Services for coccidioidomycosis, which will benefit thousands more veterans. Veterans attempting a disability claim due to Valley Fever will want to read more about this here.
Our April 2, 2003 letter to Arizona was our first step to enact regulatory change. We also sent a similar letter to California.
The page of letters to and from the AARP shows the disinterest that the AARP seems to have toward this disease, in spite of the fact that senior citizens are among those hit the hardest by Valley Fever.
We also sent a letter to the NAACP to make them aware of this disease and its frequent race-specific consequences.
We sent a powerful letter to the CDC on March 23, 2004. It includes our reactions to the CDC's tepid response to the cocci epidemic in general and their equally tepid response to our first letter (linked below). We consider our CDC letters to be excellent examples for anyone wishing to write their own letter.
Our August 4, 2003 letter to the CDC is similar to the letter
we sent to the Surgeon General. We coined the term SARFI for Severe Acute Respiratory Fungal Infection in this letter in hopes of communicating the seriousness of this disease.
It is very important to write to your elected representatives and to those in political and social positions to safeguard our health. If you do not know how to contact your local and national representatives, visit www.govspot.com and select your state from the drop-down box. You will find the correct links and very quickly be on your way to making a difference!
The following items should be considered essential in your letters.
We must make sure our public officials know we want these changes to be implemented.
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