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Giving Blood

 
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etteloc



Joined: 04 Apr 2008
Posts: 37
Location: Racine, WI

PostPosted: Fri Jan 10, 2014 5:01 pm    Post subject: Giving Blood Reply with quote

I was diagnosed with Valley Fever about 6 years ago now. I have had strange illnesses / rashes come up since then that of course the doctors have no clue what is wrong, but overall I think I am doing pretty good. I do have a question though: my work is having a blood drive. I have thought maybe I would like to try and give. However, with VF do we know (1) if they would even want my blood (I know VF is not contagious among people; and (2) is it even wise to give it with our condition? Thanks in advance for any input.
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kat



Joined: 30 Dec 2004
Posts: 912
Location: Creswell, Or

PostPosted: Sat Jan 11, 2014 7:27 am    Post subject: Reply with quote

This has been discussed on here before and I think the general consensus came back 'no'. They don't test for VF when people give blood but it would seem that, especially if you have disseminated cocci, you should not give blood. I would say the same thing for organ transplant from a VF patient. It's not worth giving the gift of life through blood if it could possibly give someone the gift from hell, if you know what I mean.
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etteloc



Joined: 04 Apr 2008
Posts: 37
Location: Racine, WI

PostPosted: Sat Jan 11, 2014 7:42 am    Post subject: Giving Blood Reply with quote

Thanks for the input. Great info. I suppose I should get myself off being an organ donor also. Oh the joys of this. Wish it was more understood. The other thing I have had happening the past couple years is my left eye feels strange and it swells up really bad underneath. Has gotten worse this year. I went to an allergist this year and was told because of the rash I had too that it was possibly poison ivy. Well, it has been freezing cold here and I am having the eye thing again. Anyone else experiencing this?
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susan ulmer



Joined: 04 Oct 2010
Posts: 418
Location: albuquerque nm

PostPosted: Sat Jan 11, 2014 9:14 am    Post subject: Reply with quote

I think VF in the head is an area that has not been investigated much. I have VF in my head as did my mother. Although my eyes do not swell, VF has taken the hearing out of one ear, snapped off my teeth, and destroyed my sinuses...as well as producing lesions in my mouth and in the skin of my face.

I have a friend, however, recently diagnosed with VF who has a problem with his eyes swelling as well. He has diabetes so the medical consensus is that the problem is caused by that rather than the VF. I am not so sure. He also suffers from the rash..which his doctor has decided is contact dermatitis. That may be true but my personal conclusion is that VF causes some chemical reaction in the skin to the environment and that causes the rash.

Hope you can get it figured out and feel better soon.
All the best,
Susan
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etteloc



Joined: 04 Apr 2008
Posts: 37
Location: Racine, WI

PostPosted: Sat Jan 11, 2014 10:15 am    Post subject: Giving Blood Reply with quote

When I was first diagnosed I was having a lot of sinus issues. Ended up having surgery and that helped, but I do still get sinus infections on occasion. It's tough because the doctors don't know what all the VF causes so they look to anything else they know to explain symptoms. But I know deep down the rash, the swelling around my eye and it feeling funny are most likely related to VF. The allergist I saw over the summer is also an immunologist. Said I could come back if I get symptoms not in the summer. But I just don't see the point. I am going to continue to monitor my stuff and maybe eventually see a VF expert. I have thought over the years that I am ok, but all this strange stuff keeps creaping up. Very frustrating. But as we all know, I think we just learn to live with it.
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vfs_admin_Dave
Site Admin


Joined: 19 Dec 2004
Posts: 275

PostPosted: Sun Jan 12, 2014 11:43 am    Post subject: Reply with quote

For Etteloc and the friend Susan mentioned: Eye issues should be pursued with an eye specialist who may find concerns such as a vitreous detachment, liquefying of the vitreous gel, or other problems that might be missed by physicians who aren't eye specialists.

I strongly suggest a qualified retinologist considering problems that had been encountered by VFS Sharon. Whether or not this is due to Valley Fever in your cases can't be said without further medical investigation, but your eye health is important enough that you should not ignore this.

[EDIT: I spoke with Sharon about this and she wanted to add something. Puffiness under the eye can also be related to liver function problems, and these should be checked as well - especially for those who are taking the frequently toxic prescription medication for Valley Fever and other ailments.]

Best of health,
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