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Has anybody been reactivated in that cocci status?

 
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katipmon



Joined: 19 Oct 2013
Posts: 2
Location: texas

PostPosted: Mon Aug 11, 2014 10:41 am    Post subject: Has anybody been reactivated in that cocci status? Reply with quote

I was diagnosed with coccidiomycosis last year ..it took over three weeks to be diagnosed....I have since been off the fluconazole and gold my ratings are okay.. In the past three months ...a lot of the symptoms have resurfaced including bouts with fever, headache, neck pain, dry cough, trouble getting my breath, chest pain, night sweats, joint aches & pains and the rash....but my doctor said that my teeter number and my IgG Numbers are within the specifications ...they've risen slightly but nothing like last year - yet I'm having trouble breathing (plus all the previously noted symptoms).
Has anybody else experienced any of this? What has your doctor stated about it? What was done for you?
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vfs_admin_Dave
Site Admin


Joined: 19 Dec 2004
Posts: 275

PostPosted: Mon Aug 11, 2014 11:30 am    Post subject: Reply with quote

Hi Katipmon,

Many people have had the experience of a reactivation.

The doctor was referring to titers. If the number was only 1:2 (pronounced as "a titer of one to two") and you had considerably higher numbers earlier, I could see how he might say this might not be a full-blown reactivation. That said, it would be worthwhile to ask the specific cause of your symptoms, to have copies of your medical records so you can check for the titer specifically.

Also, find out what he meant by "specifications." A negative IgG titer would not "rise" so I need to know what "specifications" means. It could be written as <1:2 which is pronounced as "less than one to two" and mean no antibodies were detected.

Sadly, it seems as though many doctors are specially trained not to believe a reactivation is possible. Some doctors are willing to look at the research in the book Valley Fever Epidemic and see how reactivations can occur.

That said, your doctor may have other medical aspects of your case that he is thinking about. If he does not know of the cause of the symptoms, definitely find out out what they are. If these symptoms truly are Valley Fever and he is willing to try "empirical treatment" against VF, that would mean a guess that antifungal drugs will make things better.

Naturally, since you want to know exactly why you are feeling as you do, that is not something to start right away. Also, since the drugs have some horrible side effects, you don't want to take them unless necessary.

Some patients are returned to antifungal therapy until they feel better or titers are reduced to the level the doctor wants to see...which may or may not mean a negative IgG titer. Everything varies case-by-case but I hope you have a good starting point for questions.

If it is Valley Fever again, you will certainly want to know. Never be afraid to ask why something is being done, whatever else could be done, and what else a symptom could mean.

All my best,
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David Filip
Co-Founder of www.valleyfeversurvivor.com
Co-Author of "Valley Fever Epidemic"
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katipmon



Joined: 19 Oct 2013
Posts: 2
Location: texas

PostPosted: Wed Aug 20, 2014 10:12 am    Post subject: Reply with quote

thank you for your response...of course I still have questions but I find many are answered in the forum..not from my doctor.
I do have a couple for you though..what is the difference between the IGG and the IGM? when I was first diagnosed my IGG was 1.0 and my IGM was 3.7. by the end of Dec 2013 my readings were IGG .8-IGM .5
I felt pretty decent for the first time in months..until end of April.. 2 new tests revealed there was only a slight increase in the IGM. my IGG is still .8 but my IGM went up to .8 also..I had asked if this was why I was having trouble breathing again, cough, aches, rash etc.. he told me no, my numbers were good, we argued..he stated that my symptoms were in my mind-yeah, right I told him how are the brown marks on my legs arms and face in my mind? my cough is not imaginary, or the knots on my joints(nor the pain)..there was also a 9.4 nodule in my right middle lobe.I asked if it was the cocci...he said he didn't deal with lungs, I would have to go to a lung specialist. I'm looking for a new doctor. hope I did the right thing.
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vfs_admin_Dave
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Joined: 19 Dec 2004
Posts: 275

PostPosted: Thu Aug 21, 2014 9:37 am    Post subject: Reply with quote

Katipmon, since he was unwilling to deal with a possible lung infection I am confident that a pulmonologist or infectious disease doctor would be a good person to talk to - especially to evaluate the nodule in your right lung. I hope this is the start of positive developments in your treatment.

All my best,
_________________
David Filip
Co-Founder of www.valleyfeversurvivor.com
Co-Author of "Valley Fever Epidemic"
www.valleyfeverepidemic.com
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