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ANYONE HAD SKULL INJECTIONS IN CALIF?

 
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NANCY LOU



Joined: 12 Jul 2008
Posts: 1
Location: SAN LUIS OBISPO, CA.

PostPosted: Sat Jul 12, 2008 1:00 pm    Post subject: ANYONE HAD SKULL INJECTIONS IN CALIF? Reply with quote

After 5 years of diflucan and vefend I'm afraid that I might be told that as last resort I will have to resort to skull injections. The only doctor I know that is qualified is a doctor in Bakersfield. My question is has anyone had such an experience? I'd like to hear from you. Thanks Nancy Lou
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Robin Smith



Joined: 28 Dec 2004
Posts: 349
Location: San Diego

PostPosted: Sat Jul 12, 2008 3:15 pm    Post subject: Intrathecal Amphotericin (Skull Injections) . . . Reply with quote

Hi Nancy Lou:

I began having intrathecal (skull) injections 8 years ago after failing a long and very high dose course of Fluconazole (diflucan). The injectable medicine that you speak of is Amphotericin-B (AmBisome) also colloquially known as ampho-terrible. You mentioned that you have a Dr in Bakersfield. Is it Royce Johnson by chance? Dr Johnson is responsible for outlining a treatment regimine that my Dr (in San Diego) followed to a "T". I credit both of them with saving my life. These treatments were indeed a last resort (as you say). Even as I laid comatous in ICU, my family was reluctant to proceed until the Dr informed them that without intrathecal ampho there would be no chance that I would survive my infection. Before the treatments began, an Ommaya resevoir (about the size of a nickel) was surgically implanted under the skin (invisible) behind my left ear into which the amphotericin is injected. A small tube leads from the resevoir, through the skull and into the basilar cistern at the base of my skull. This places the medicine directly into the brain/spinal fluid to combat the infection. It has been a long time coming but the cocci in my brain/spinal fluid (cocci-meningitis) is presently undetectable. While the last 8 years of intrathecal amphotericin treatments have been a very rough ride, they are also the reason that I am alive today. I would be happy to share my experiences with you.

Sincerely,
Robin
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